18 Cultural Differences Between the USA and EUROPE
Is Europe Ahead of the U.S. in Its Commitment to MS Care?
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I had every intention to write several blog posts from the European MS Platform (EMSP) spring conference last week. I’ll make the apologies short and say that travel, hot conference rooms, a packed schedule and still being on my heals from my latest setback put rest ahead of blogs.
One of the major events of the conference was the unveiling of EMSP’s European Code of Good Practice in MS. This document has a core principle of empowerment and five specific action areas with timelines that reach ahead through the next 10 years. Each action area has two calls to action which range from the painfully obvious to higher goals.
While concise, to post all 12 calls to action would take more space than practical. I’ll encapsulate:
Empowering People with MS
All who work with people with MS should encourage patient involvement in decision-making and provide honest and useful information to that end.
Ensuring Access to MS Treatments, Therapies, Rehabilitation and Services
All people with MS must be able to access treatments, therapies and rehabilitation service as well as skilled professional support to live well and long and the importance of MS nurses in that mix must be acknowledged and fostered.
Better Understanding and Treatment of Pediatric MS
Children and adolescents with MS must be able to access quality services and treatments appropriate to their situation and research resources must be targeted to those ends.
Focusing MS Research
MS research must focus on progressive MS. Shared research and data management strategies must be developed and funded.
Enabling Employment, Job Retention and Education
Employers and educators must be aware of all polices and legislation to provide support to people with MS (and all chronic conditions) to ensure greater flexibility in the work and school place so we can be of use.
Supporting and Empowering MS Carers
The friends and family who help us live our lives with MS need special support and resources. Their needs and access to each other in order to develop a voice must be addressed.
EMSP Action Areas and calls to action will be monitored and an annual progress check will be reported.
This is a big step for an entire continent to get behind such a document. It may seem like a given set of standards to some of us living with MS, while nearly out of reach of others. It is a good document, a good set of goals and a required path to help us all live well until the day a cure is found.
What are your thoughts (weather you live in Europe or not) about such a Code?
More from the conference in coming blogs.
Wishing you and your family the best of health.
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Video: Europe & America: The Way Ahead (Full Recording)
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